MARCH 12–Four ♥ Stories & A Big Loud Meow

Update needed, as Caitlin used to say. ♥ Story 1, JESS: Nick and I are on St. John. The night before we left, we had dinner with the incredible Jess in Boston. She had been cleared by her oncology team to go to Kenya for two weeks. Once in Nanyuki, she was able to finally lay […]

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JANUARY 1–Everybody Sees the Wind Blow

I have been sending Caitlin text messages: I love you. Where are you? I love you. Before that, when she was mostly unconscious in the ICU, I would write, I miss you, bud. So many things I go to tell you, just dumb things, like Pup. Puppetypuppup. I’m sending these now for us to laugh […]

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JULY 14–The Unthinkable Transplant, (Linked essay by Caitlin)

In this column for the Cystic Fibrosis Lifestyle Foundation, Caitlin talks about how the word “transplant” always terrified her. It terrified me, too. But that’s for another day. Right now, at 8:47pm on Monday, July 13, as I write this, there’s a rainbow over Pittsburgh, and Caitlin’s on the balcony with it. Read the entirety […]

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APRIL 24–“The timeless, repetitive waiting.”

Well, today marks one year on the transplant list. On April 24, 2014, Caitlin wrote a blog post about what was ahead. And what was ahead has turned out to be a very long wait. I was telling a friend that it reminds me of the beautiful show and Pulitzer Prize-winning book, (TALES OF THE) […]

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APRIL 1–Lots of “Months”

My lighter side loves April Fool’s Day. My literary side loves National Poetry Month. But our beautiful Caitlin has been waiting almost a year for a lung transplant, and what’s most on my mind is that April is also Donor Awareness Month. So click on the photo for a poem that rethinks the way we […]

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MARCH 15–Winter to Spring

Today marks three months here, but this beautiful painting, which our wonderful friend, Stephanie Danforth, recently painted and sent to Caitlin, reminds us that spring is imminent, and that every day spent waiting means one fewer day to wait. PS: If you want to follow this blog, just click +Follow, down to the right, and […]

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JUNE 29 – A Few Clarifications

* The other day, I posted a #ThrowbackThursday photo of Nick and me on St. John. A few people didn’t notice the Hashtag-Throwback part.  Nick and I are most definitely not on St. John. * We can’t venture from our home base in Boston. When Caitlin gets called, we have four hours to get to […]

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March 12: Home to Wait

So Caitlin is accepted as a Tx candidate, and there is relief in that. She doesn’t have a “number” yet; there are still a couple of minor tests to do which affect the number, and in any case, the number is really “just a number.” If lungs become available that are just right for you, […]

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Looking for Caitlin Updates?

“It’s part of why the idea of souls makes sense to me. This place is just like a ropes course for souls. A learning center. It never changes and the collective body of humans can never sustain their progress too too much or else there is not enough to challenge the souls. Imagine all the […]

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March 8 – Pittsburgh

A quick update for all who have been so kindly inquiring. Caitlin’s here at UPMC Presby, completing the transplant evaluation. UPMC is great in many ways (the important ways). Food-wise, it’s 1950s, with meals served at 7:30, noon, and 5pm. It’s been tough trying to fatten up the kitten, but we’re figuring it all out. […]

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