APRIL 15 –Every Day is Awareness Day Here

I made Caitlin pose for this photo (almost 2 years ago) — but I like it and she said “ok” to putting it up to raise organ donor awareness during organ donor awareness month. Caitlin has been on the waiting list since APRIL 24, 2014. Two years! And she’s not alone in her wait. There’s […]

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JULY 14–The Unthinkable Transplant, (Linked essay by Caitlin)

In this column for the Cystic Fibrosis Lifestyle Foundation, Caitlin talks about how the word “transplant” always terrified her. It terrified me, too. But that’s for another day. Right now, at 8:47pm on Monday, July 13, as I write this, there’s a rainbow over Pittsburgh, and Caitlin’s on the balcony with it. Read the entirety […]

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APRIL 24–“The timeless, repetitive waiting.”

Well, today marks one year on the transplant list. On April 24, 2014, Caitlin wrote a blog post about what was ahead. And what was ahead has turned out to be a very long wait. I was telling a friend that it reminds me of the beautiful show and Pulitzer Prize-winning book, (TALES OF THE) […]

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APRIL 1–Lots of “Months”

My lighter side loves April Fool’s Day. My literary side loves National Poetry Month. But our beautiful Caitlin has been waiting almost a year for a lung transplant, and what’s most on my mind is that April is also Donor Awareness Month. So click on the photo for a poem that rethinks the way we […]

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MARCH 15–Winter to Spring

Today marks three months here, but this beautiful painting, which our wonderful friend, Stephanie Danforth, recently painted and sent to Caitlin, reminds us that spring is imminent, and that every day spent waiting means one fewer day to wait. PS: If you want to follow this blog, just click +Follow, down to the right, and […]

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May 27 – The Start of Summer, & Waiting

We’ve been getting  a lot of questions that make us realize that the average person doesn’t realize just how scarce organs are. But scarcity is why people wait so long, and generally have to be far sicker than they need to be before surgery. Last year, donations of all organs were, unfortunately, down in the […]

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