DECEMBER 18–It’s a Go

Bottom line for all who are holding their breath: At 8:30 am, Caitlin was taken to the OR. At 9:30, we got word that the blessed donor lungs are good and that surgery will begin as these lungs make their way to Caitlin. (It’s a carefully timed and choreographed surgical dance.) This will be a […]

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DECEMBER 9–‘The Sickest Person in the United States’

Caitlin just got out of the OR again, where the head lung transplant surgeon here at UPMC Pittsburgh, Dr. John D’Cunha, inserted a trach. It gets the breathing tube out of her mouth, makes her a lot more comfortable, and helps her oxygen saturation. He came in to tell us that all had gone well […]

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DECEMBER 9 –Gifts

First of all, I want to say thank you thank you thank you to all the notes, messages, texts, calls, gifts, food—–all the LOVE we are receiving. The support is tremendous and allows us to keep vigil by Caitlin’s bedside, and I know she feels it. They can’t keep her too sedated because it suppresses […]

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DECEMBER 9–Currently Stable

Yesterday I wrote, “Now it is absolutely essential that she get back to a stable place, so she can receive another offer.” It’s early morning on Friday as I write this, and I am happy to report that with the help of her fantastic team here, she did reach a tentatively stable place, finally, yesterday, […]

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DECEMBER 6 — Tiger, Angel

Thank you so much for the outpouring of caring. Reading all the notes made me teary and grateful for all of the wonderful people in my beautiful daughter’s life. I’ll try to update every day, but sometimes it might be hard. Things are changing quickly. After a traumatic couple of days, Caitlin was relatively stable […]

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JUNE 19–The Menu

Yesterday my dad sent my mom and me a photo of a little menu he had drawn up: “How to entertain yourself when your wife is in Pittsburgh.”  He had gone to the Ashland farmer’s market that morning — where he is a regular, making the rounds — after returning the previous night from the […]

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OCTOBER 24 — A Year & A Half

caitlin o'hara, little matches

So, an update. Today marks 18 months on the waiting list. A year and a half. It’s a longer-than-normal wait, no question. Caitlin had her biannual transplant appointments this past week. There is a new surgeon here (there are 3 on the team), whom we met and really liked. Everyone on the transplant team seemed […]

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