SEPTEMBER 18 — ✨Signs✨

Over the course of writing my book these past two years, I asked the question that a lot of grieving people ask: “Does consciousness survive death?”  It’s a question with no definitive answers, but what has really stood out to me is just how much research has been done by people of science. One book that […]

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AUGUST 1 — Birthday Days ❤️

When I was pregnant and my baby was due mid-summer, I wanted a July baby. July seemed to be a vibrant month: warm, lush, expectant! August seemed so enervating–I associated it with long, bored days of childhood, when all I seemed to do was lie about on stiff, dried-out grass, listening to the drone of […]

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MAY 22 — Housekeeping

1. The New York Times just published an article about experimental phage therapy and Mallory Smith’s SALT IN MY SOUL. It is bittersweet, indeed, to know that phage therapy, administered early enough, might have done so much to prevent Mallory and Caitlin and and others from even needing transplants, but other people are already benefiting from […]

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APRIL 16–Salt, Sweat, Pittsburgh

Today, Nick and I are on our way to………Pittsburgh. Yes. But first, yesterday. Yesterday, Jess, Nick and I had grandstand viewing passes at the Boston Marathon Finish Line. We cheered the finishers along with a mother and her two adult daughters–BAA volunteers–who fell in love with Jess. When Jess said she wanted to try to […]

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MARCH 22 — Retablos from Caitlin

I haven’t seen the new movie, “Five Feet Apart,” about two teenagers with CF, but I hear that it  “gets it right” and I’m excited about that. A while ago, I’d said I would start posting more of Caitlin’s own words here. I got too busy writing my book to focus on it, but with […]

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MARCH 12–Four ♥ Stories & A Big Loud Meow

Update needed, as Caitlin used to say. ♥ Story 1, JESS: Nick and I are on St. John. The night before we left, we had dinner with the incredible Jess in Boston. She had been cleared by her oncology team to go to Kenya for two weeks. Once in Nanyuki, she was able to finally lay […]

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DECEMBER 20 —

Well, this is a tough day, no question, but I have to mark it with a post. Last week, I finally made time to visit the medical museum run by Mass General Hospital. I wanted to get a close-up view of the first heart-lung machine, which I’d been seeing through the window whenever I passed […]

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