July 16 – Magic Caitlin

It’s a wondrous thing to create a child, send her out into the world, and see what happens. Caitlin’s life influenced many others and over the years, especially the last few, it’s been heartening to learn how. One friend from her high school days is an artist and a few months ago, told me she […]

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Mother’s day – “Everybody has some kind of….”

This morning, Nick and I were talking about the fact that some people seem to be afraid to read Little Matches when a friend sent me a message: I hadn’t yet started LITTLE MATCHES because a friend’s son is dying of cancer, and I didn’t think I had the emotional capacity. Last night, however, your […]

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MAY 3 – One spark at a time

I asked some of Caitlin’s friends if they would want to write up a little something that I could put on my website. Here, Kenley describes Caitlin as only a lifelong best friend from childhood can. Someone recently asked me how I thought Caitlin might feel about Little Matches being out in the world. I […]

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MARCH 23 – FOUR MORE TUESDAYS 🕯

Three years ago right now I was in Italy at a literary workshop. I had 25 pages of Little Matches written but I still I had no idea whether it would ever become a book. When I arrived home, I resumed my practice of setting a timer every day and sitting down to write “no […]

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SEPTEMBER 18 — Matches struck in the dark

Update needed, as Caitlin would say. Three years ago today, on the 9-month anniversary of her lung transplant, during a walk around Walden Pond, I decided to start writing what I called “the Caitlin book.” I wasn’t even sure what kind of book it would be, or if I could manage to write it, but […]

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SEPTEMBER 18 — ✨Signs✨

Over the course of writing my book these past two years, I asked the question that a lot of grieving people ask: “Does consciousness survive death?”  It’s a question with no definitive answers, but what has really stood out to me is just how much research has been done by people of science. One book that […]

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AUGUST 1 — Birthday Days ❤️

When I was pregnant and my baby was due mid-summer, I wanted a July baby. July seemed to be a vibrant month: warm, lush, expectant! August seemed so enervating–I associated it with long, bored days of childhood, when all I seemed to do was lie about on stiff, dried-out grass, listening to the drone of […]

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MAY 22 — Housekeeping

1. The New York Times just published an article about experimental phage therapy and Mallory Smith’s SALT IN MY SOUL. It is bittersweet, indeed, to know that phage therapy, administered early enough, might have done so much to prevent Mallory and Caitlin and and others from even needing transplants, but other people are already benefiting from […]

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APRIL 16–Salt, Sweat, Pittsburgh

Today, Nick and I are on our way to………Pittsburgh. Yes. But first, yesterday. Yesterday, Jess, Nick and I had grandstand viewing passes at the Boston Marathon Finish Line. We cheered the finishers along with a mother and her two adult daughters–BAA volunteers–who fell in love with Jess. When Jess said she wanted to try to […]

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MARCH 22 — Retablos from Caitlin

I haven’t seen the new movie, “Five Feet Apart,” about two teenagers with CF, but I hear that it  “gets it right” and I’m excited about that. A while ago, I’d said I would start posting more of Caitlin’s own words here. I got too busy writing my book to focus on it, but with […]

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