APRIL 23–Coincidences (?)

There are so many, and they have happened pretty much every day, this past year. Here are a couple of crazy ones. When I announced, in September, that I would be writing my story in a more contained form, the universe seemed to lead me to Dani Shapiro, the author of many moving pieces of […]

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FEBRUARY 8 — St. John Onward

I haven’t been blogging because I am focused on writing “the Caitlin book,” but we are on our family’s beloved island of St. John right now, and it seems a good time to say hello. In 2014 (4 years ago, how can that be??), we had a big trip to St. John planned. I had […]

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APRIL 6–Master of the Suck-It-Up Smile

Caitlin O'Hara, Cystic Fibrosis, Little Matches

A courageous ray of light.. Caitlin’s cousin Melissa is a sweet and noble soul, and her write-up for the “Xtreme Hike” (30 miles in one day) that she is training for in honor of Caitlin, to raise $$ for the Cystic Fibrosis Foundation, both breaks my heart and uplifts it at once. Caitlin was ‘a […]

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JANUARY 1–Everybody Sees the Wind Blow

I have been sending Caitlin text messages: I love you. Where are you? I love you. Before that, when she was mostly unconscious in the ICU, I would write, I miss you, bud. So many things I go to tell you, just dumb things, like Pup. Puppetypuppup. I’m sending these now for us to laugh […]

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May 27 – The Start of Summer, & Waiting

We’ve been getting  a lot of questions that make us realize that the average person doesn’t realize just how scarce organs are. But scarcity is why people wait so long, and generally have to be far sicker than they need to be before surgery. Last year, donations of all organs were, unfortunately, down in the […]

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