MARCH 12–Four ♥ Stories & A Big Loud Meow

Update needed, as Caitlin used to say. ♥ Story 1, JESS: Nick and I are on St. John. The night before we left, we had dinner with the incredible Jess in Boston. She had been cleared by her oncology team to go to Kenya for two weeks. Once in Nanyuki, she was able to finally lay […]

Read More

NOVEMBER 16–& the Anniversaries Begin

I know all the dates. Yesterday a year ago was the last night Caitlin would ever sleep in her own bed. That night, she was so weak she did not have the strength to sit in the bathtub and let me wash her hair. I was so alarmed I emailed her doctor at 10pm. On […]

Read More

DECEMBER 16–A Matter of Ethics

  Many people rightly wonder why Caitlin couldn’t be transplanted at home, in our world-class medical city, Boston. The answer is disturbing, and points to a flaw in the medical system. It’s a fight she was gearing up to fight, one she plans to continue after transplant. Here is a draft of a letter she […]

Read More

DECEMBER 16–The Thing with Feathers

“Hope is the thing with feathers that perches in the soul – and sings the tunes without the words – and never stops at all.” – Emily Dickinson I believe in the power of energy and I believe in the power of love. I believe that if as many people as possible know about Caitlin […]

Read More

DECEMBER 16–The Tiger Inside

caitlin o'hara, little matches

Clearly, my silence of the past few days has indicated that it has been a time of waxing and waning health and hope. I’m not going to go into all the details but Caitlin has had a lot of complications and on Tuesday was temporarily considered “not strong enough to undergo surgery.” BUT–in the past […]

Read More

DECEMBER 12–Stable, Search for Lungs Continues

Last night, we were all so exhausted that all I could do was ask for prayers and try to close my eyes while she was in the OR. The procedures lasted 3 hours. She came out at 2am. She is as stable as she can be right now. The situation is precarious. As I write […]

Read More

DECEMBER 11 — Light Snow, Quiet

Sorry for the lull in updates, but things are pretty quiet in the CTICU today and that’s a good thing. It’s been snowing lightly all morning. Christmas carols are playing in the lobbies. Winter has come, and we always felt she’d be transplanted in winter. She’s had dressing changes, adjustments to the ECMO, constant monitoring, […]

Read More