JANUARY 31–Half-Birthday, Groundhog Pup

Caitlin O'Hara, Cystic Fibrosis, Little Matches

I’ve been doing some reading about grief and neural pathways and how grieving morosely can become a chronic habit. I believe that eventually we want to be in the position of celebrating Caitlin’s life as opposed to mourning her death, as a friend said last week. So I’m going to make an effort right now […]

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JANUARY 30–Windows Left Open

I haven’t seen Hamilton yet, but I know the music well and I keep thinking of the lyrics… The world turned upside down ๐ŸŽถย ย ย ย ย  My God, it’s so upside down right now, but everyone’s protesting, speaking up. It feels good, but if you’re feeling helpless, you can start here: Join the American Civil Liberties Union […]

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JANUARY 28– The Answer, from Caitlin

When Caitlin was a small, small person and had frequent hospitalizations and weeks of home courses of IVs and then a long, serious surgery at age 11, my mother would always marvel at her. “She’s so stoic,” she would say. But it wasn’t like Caitlin didn’t have fears or anxiety. It was just that she […]

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JANUARY 24–The Price We Pay

We are home. We decided to fly out of San Francisco on Saturday. It was time; we need to get things done here. I was sorry to miss the marches, but as my good friend Ellen pointed out: I wasn’t sure I could go into the Boston apartment, never mind sleep there, but we did, […]

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JANUARY 20–‘In the Dark May You See’

January 20. Caitlin’s been gone a month, and many of us are sharing a national day of mourning. My friend, the wonderful writer Jennie Fields, just shared two new poems written by her friend Kory Wells. These poems really speak to me, and I hope they will speak to you as well. “In the dark […]

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JANUARY 19–Words from Jess

Jess wrote a post on her own blog today. It’s beautiful and here it is: Castro avoided over 600 assassination attempts throughout his life, but even he couldnโ€™t hide from 2016.ย  2017 is the year of the Rooster and the year that a person who has never held public office is slated to become the […]

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JANUARY 17–In the Redwood Forest

Below is a screenshot of Caitlin’s Instagram from our trip home in September, 2015, when she got to visit the Prouty Garden one last time.ย  As I’ve mentioned, the current Children’s Hospital administration made their decision to cut down/kill the Prouty Garden’s 65 foot Dawn Redwood tree this past December, the same day Caitlin went […]

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