Tag: kalydeco

MARCH 22 — Retablos from Caitlin

.Reading time 22 minutes.

I haven’t seen the new movie, “Five Feet Apart,” about two teenagers with CF, but I hear that it  “gets it right” and I’m excited about that. A while ago, I’d said I would start posting more of Caitlin’s own words here. I got too busy writing my book to focus on it, but with […]

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APRIL 23–Coincidences (?)

.Reading time 10 minutes.

There are so many, and they have happened pretty much every day, this past year. Here are a couple of crazy ones. When I announced, in September, that I would be writing my story in a more contained form, the universe seemed to lead me to Dani Shapiro, the author of many moving pieces of […]

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JANUARY 24–The Price We Pay

.Reading time 8 minutes.

We are home. We decided to fly out of San Francisco on Saturday. It was time; we need to get things done here. I was sorry to miss the marches, but as my good friend Ellen pointed out: I wasn’t sure I could go into the Boston apartment, never mind sleep there, but we did, […]

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