9 Lives Notes

July 14, 2015

kittenupdates

Cystic Fibrosis & Organ Donation Awareness, Healthcare Insights

cystic fibrosis, donating organs, lung transplant, lung transplant listing, lung transplantation, UPMC

5 comments

JULY 14–The Unthinkable Transplant, (Linked essay by Caitlin)

Caitlin & Andrew in 2013 Looking Good/Feeling Bad — In 2013: Looking Good. Feeling Bad

In this column for the Cystic Fibrosis Lifestyle Foundation, Caitlin talks about how the word “transplant” always terrified her.

It terrified me, too.

But that’s for another day. Right now, at 8:47pm on Monday, July 13, as I write this, there’s a rainbow over Pittsburgh, and Caitlin’s on the balcony with it.

Read the entirety of her thoughts here: The Unthinkable Transplant

-Maryanne

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kittenupdates

I am the author of CASCADE and LITTLE MATCHES: A Memoir of Grief and Light

5 responses to “JULY 14–The Unthinkable Transplant, (Linked essay by Caitlin)”

nickohara@aol.com

July 14, 2015

Hi bud love y

Sent from my iPhone

>

Reply
Ann Napolitano

July 14, 2015

I think you and Caitlin are amazing, Maryanne, and inspiring. I cannot wish enough health and happiness in your PA direction…

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1. kittenupdates
  
  July 14, 2015
  
  Thank you, Ann. We’re hanging in there. xo
  
  Reply
Eileen Murphy

July 15, 2015

It must be so great to have a little bit of outside space now, to be able to sit on the balcony and feel the air and sunshine on your skin is so important.
I was privileged and humbled to read your thoughts Caitlin’s on how you’ve lived with cystic fibrosis and how you’ve come to terms with needing a transplant. Your positivity and dedication to living a healthy lifestyle will be an inspiration to other people that have CF, you are a remarkable and beautiful young woman and I pray every day that the call will come soon so that you can get back to living your life to the full. This message comes with lots of love and hugs from Eileen & Padraig and my gorgeous grandson Morgan,that I’m looking after today 🙂
Xx

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maryanneohara

July 15, 2015

Thank you! Miss you–can you believe your visit was a year ago? Morgan must be lovely. xo

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