MARCH 27–I Keep Thinking..

Caitlin O'Hara, Cystic Fibrosis, Little Matches

I’ve never been one to say “life’s not fair,” or to be angry about Caitlin’s CF, or about her (not-inevitable) decline and need for a lung transplant. I’ve always tried to be philosophical and optimistic and I truly do believe that tough experiences ‘grow your soul’ and make you a more compassionate human being. But. Nick and […]

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MARCH 20–Checking In

So it’s three months today. December 20, a day that started with a doctor’s pronouncement: “She’s stable, but…” I haven’t been moved to write lately. Thank you to those who have been concerned and checked in. Honestly, at this point, it’s not any easier. It’s harder. Every day I try to unpack at least one […]

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MARCH 4–Knock knock knockin’

Caitlin O'Hara, Cystic Fibrosis, Little Matches

Yesterday I heard Knocking on Heaven’s Door (different versions) 3 times before 10am. That got me thinking about Caitlin, and about Bob Dylan. Here’s a text she wrote, in November, about him winning the Nobel Prize for Literature. Something to read on a frigid Saturday. The more I think about the Dylan thing the more […]

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