Monthly Archives: March 2014

March 28: Still unlisted, still doing the bits and pieces

There is a whole health maintenance checklist that has to be done before actual listing. Dental clearance, bone scans, bloodwork, vaccines, etc. It’s good to be back in Boston, though, and Caitlin has one heck of a great attitude. She’s been venturing out with friends—on the O2, it takes some organizing and planning, but it’s doable and she’s doing it.

xo

March 18: Boston. We are waiting to start waiting

We are grateful to be back in Kitten’s Boston apartment after our long drive from PA. It turns out that there are still a bunch of small tests and procedures that have to be done before actual listing, so Caitlin is focusing on getting all that done. The restrictions of the past few months, which continue, have been tough on her, but she’s been doing an amazing job of staying positive.

Screen Shot 2014-03-18 at 6.01.21 PM

March 12: Home to Wait

So Caitlin is accepted as a Tx candidate, and there is relief in that. She doesn’t have a “number” yet; there are still a couple of minor tests to do which affect the number, and in any case, the number is really “just a number.” If lungs become available that are just right for you, and the circumstances are right, you get them. It’s all fate, chance, luck, divine intervention—whatever you want to call it.

The good news is she’s stable enough, at the moment, to wait at home in Boston, so she and I and Andrew, who’s been unbelievably caring and supportive, are heading out today. She will be discharged on IV meds and oxygen, and I rented a large, comfortable SUV for us. Commercial flying still feels a bit too risky (virus season/stress). This is so welcome, because when we left Boston on the medical jet last week, we had no idea what was ahead, and did worry that we would have to stay on in Pittsburgh indefinitely. We may end up waiting back here at some point, but for now, we are taking it one day at a time.

She actually feels okay and looks like normal Caitlin ! fyi

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Looking for Caitlin Updates?

“It’s part of why the idea of souls makes sense to me. This place is just like a ropes course for souls. A learning center. It never changes and the collective body of humans can never sustain their progress too too much or else there is not enough to challenge the souls. Imagine all the people living life in peace ✌️ John Lennon – well that wouldn’t really work if you believe we need to be challenged to grow.”  —Caitlin O’Hara

caitlin-and-henry

Christmas, 2012

March 8 – Pittsburgh

wall upmc

A quick update for all who have been so kindly inquiring. Caitlin’s here at UPMC Presby, completing the transplant evaluation. UPMC is great in many ways (the important ways). Food-wise, it’s 1950s, with meals served at 7:30, noon, and 5pm. It’s been tough trying to fatten up the kitten, but we’re figuring it all out.

We should have some transplant answers and a plan by next week. We are also hoping to get her out of the hospital, as it’s going on four weeks now, and that’s just this visit. Whether we will be able to wait at home or in Pittsburgh is still undecided.

For everyone who has asked for an address, thanks so much. But since she may be discharged soon, we would advise holding off on sending anything. The kitten always appreciates those emails and texts, though, and I’ve hung a bunch of photos from home on the wall opposite her bed.

I volunteer at the Brigham, and one thing I’ve realized is this: (Take note if you ever have to go into the hospital for something serious.) It’s important to hang up photos to 1) remember who you are, and 2) to remind the medical people that you are way, way more than your illness.