Writing Through Tragedy – Page 2

SEPTEMBER 18 — Matches struck in the dark

Update needed, as Caitlin would say.

Three years ago today, on the 9-month anniversary of her lung transplant, during a walk around Walden Pond, I decided to start writing what I called “the Caitlin book.” I wasn’t even sure what kind of book it would be, or if I could manage to write it, but it seemed a worthy goal, and I had no idea what else to do with myself besides lay down and die.

I wrote ploddingly, like a zombie at first, and then as if in a fever. It took two years. I was fortunate in that it found a very good home, very quickly, last fall, with HarperOne, a visionary and soulful house tucked inside the busy and sometimes spirit-crushing world that is New York publishing.

Today, three years later, I can announce that the book is well into production, with a cover and beautifully designed pages. It is now a book that can exist in this world without me, and there’s a very large measure of relief in that.

People have been asking when they can pre-order and there are two answers: right now and thank you. Pre-orders help books so much, you may have no idea, but it’s the age-old story: the more interest there is in something, the more interest there is in something, and the more popular and supported that something becomes. I do believe that this book is very worthy of support, so thank you for pre-ordering, and sharing this page with others, and gifting it, and talking about it.

The book is about my search for revelation and meaning, for answers to the big life questions: Where is she? Is she? Is there more to life than this life? Does consciousness survive death? Does my existence have any real purpose? Does anyone’s?

I wrote it, but some of it almost feels divinely downloaded. And Caitlin’s old-soul wisdom permeates the entire book, of course.

People ask about the title. LITTLE MATCHES is a riff on a few lines from a favorite book of mine. Those two little words —”little matches”—represent all that the book is to me, and what I hope it will be for others.

Part 3

Chapter III

“What is the meaning of life? That was all — a simple question; one that tended to close in on one with years. The great revelation had never come. The great revelation perhaps never did come. Instead, there were little daily miracles, illuminations, matches struck unexpectedly in the dark; here was one.”
Virginia Woolf, To the lighthouse

When you write a book, you also end up writing a little script whereby you distill its essence so that you can talk about it at events and such. Here’s what I wrote for the preface and what I know I will say over and over and it will always be a truth: I am not the first person to have lost what was most important to me. Humans lose every day, and lose hard: children, beloveds, sacred homelands, freedoms. LITTLE MATCHES is for anyone who loses hard and asks, Now what?

♥️ Thank you.

Pre-Order Links to Receive Your Copy on Pub Day:

30 JUNE––Arc of a Life, a heart intact

I thought that losing Caitlin taught me all there was to know about love and loss and “you don’t know what you’ve got till it’s gone” but with my mother newly departed from this earth, I’m reminded that life is constantly teaching, and my faulty human self always has more to learn.

The practical side of my nature has often been bewildered by the fact that after someone’s death, the people closest to them seem to develop amnesia regarding who in fact the deceased had been. Before my father died, my mother, who had been divorced from him, always referred to him as “your father.” After death, he became good old “Dad.”

I saw this happen with others. Friends and the parents they’d never really gotten along with. Exes. Although I certainly agreed with recognizing the good in a person, I was perplexed by the all-over coloring in of the negative.

For four months now, we knew our mother could pass at anytime, but it was only during her last days, when she was definitely in transition, that the alchemic something happened inside my own brain. We were finally allowed to visit her in hospice, where she lay uncommunicative, and as I held her hand, I could not see anything but the positive in her, and wondered why on earth I’d ever been bothered by the negative.

Later, I sat at my desk to write her obituary. One’s final day is such a punctuation mark, the arc of the life laid out, with all the good (and the generally understandable reasons for the not-so-good) there in plain sight, forcing us to consider, what really matters in the end?

Some people seem to know what really matters from birth. Caitlin was one. And I have siblings and nieces and nephews who are others.

My niece Jillian summed up “what matters” very well in this Instagram post, and I would like to share it.

jillian_hyllantree_twisla

This light crossed over today, on her way home to join the ancestors ✨
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In March, as covid came to Maine, we got a few hours notice that the facility she was receiving end of life care at would close to visitors for the foreseeable future. I was the only one who could drop everything and get there that day to be with her. I asked her what she wanted from the outside world. Pink lipstick she said. That sums up her personality exactly; truly a Sagittarius, bucking all social norms, always looking for an adventure…
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So I bought pink lipstick and soup from a local deli and spent a few hours with my Nana while I could. I was afraid I might never get to see her again. I tried not to show it. She told me that day that she had never thought she’d die, but she realized now that it was happening.
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For the last three months we have only been able to see her through a glass door, talking on speakerphone. Every single time was painful. I kept feeling like she was holding tight, waiting to go. Waiting for covid to pass first.
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Then on Wednesday, because she had transitioned, I was able to go see her. After months of seeing that building as an impenetrable fortress, I found myself casually walking through it’s doors. I put on my medical gown, my mask, and went to find my grandmother.
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What an honor, unexpected relief and joy to be with her as she died. To massage her wrinkled hands, her shoulders, her arms. I traced her face with my fingers the way she traced mine as a child, something I always loved, something that feels so gentle and loving. .
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Earlier that day I had an ancestral healing session. One of the many exchanges I’m in the midst of for the ancestral healing practitioner training I’m in. In the session my ancestors showed me the way she was being held, surrounded by love, nurtured… They showed me the healing taking place between her and her many years deceased mother. They showed me how well received she would be.
Humans are complex. We have as many faults as we have strengths. But at the core, this is a woman who lived and died with her heart intact. And for the example, I’m truly grateful.

These past months, I’ve been grateful to have siblings who are people of good character. When our mother went on hospice care in April, and with all of us unable to visit, we began lighting candles and texting photos of them to each other every night at 8pm. It became a lovely ritual––the buzz of the phones, the screens full of light. I shall miss it.

✨ Florence Daly Bavaro, 1936-2020 Obituary ✨

2020 — Big World

On New Year’s Day 10 years ago, I woke up to a text from Caitlin.

She was still living independently and rarely talked about long-term survival, but transplant was looming. Transplant was on her mind, and it showed in that confession of uncertainty tucked inside the bigger message of optimism and love.

She did see that blue moon, in Pittsburgh five years later. I write about it in LITTLE MATCHES:

We watched it on her birthday, from our window high on the 15^th floor, and here it is, still existing inside my phone: the full moon shining through a band of bright clouds, the lights of Mount Washington reflecting in the black Monongahela River below. Caitlin stood in front of me and the feeling then was like the feeling now, like I am existing inside multiple dimensions as I recall how I recalled that 2010 text and our first, frightened trip to the city where we had come to find ourselves trapped inside time, waiting.

Time. I’ve always had a complicated relationship with it. It’s always hurting my head. I’m the kind of person who constantly thinks, “One week ago, __ happened,” or, “Exactly two years ago on this day, we were ___ ” or “How can it be ___ since _____, when it feels like maybe 3 weeks ago at the most???”

I cannot believe it is 2020. That it was five whole years ago that we had just moved to Pittsburgh and were saying to ourselves, “In five years, this will all be long over…”

I amused myself yesterday by making some illustrations of how muddled and partially erased the last decade feels.

At Christmas that first year in Pittsburgh, I put a small rubber ball, printed with the map of the world, in Caitlin’s stocking.

“After transplant, the world will be yours,” I said.

She dared to hope for the freedom to travel easily, to go to Africa with Jess. Jess is there now, officially opening the doors of THE LEO PROJECT IN HONOR OF CAITLIN O’HARA on January 17th. She’s got a bunch of friends with her, to celebrate her incredible accomplishment. I don’t think her friend Perry Tyler will mind if I share a couple of her stunning photos. I’d ask, but they are all climbing Mt. Kilimanjaro as I write…

The world is so big and beautiful. What do the next ten years hold for you?

For me, with LITTLE MATCHES coming out about a year from now, I almost feel like, “my work here is done.” But I will spend the coming months preparing for publication and planning how I will talk to audiences about the many topics the book speaks to.

I can’t wait.

–Maryanne

“I always pull back and picture myself in time and in space geographically. It makes me removed enough to ultimately feel that there is not much I can do to change the shifts of the world, but also inspired enough to think – what is my role in this lifetime?”–Caitlin

JANUARY 20–‘In the Dark May You See’

January 20. Caitlin’s been gone a month, and many of us are sharing a national day of mourning. My friend, the wonderful writer Jennie Fields, just shared two new poems written by her friend Kory Wells.

These poems really speak to me, and I hope they will speak to you as well.

“In the dark may you see all that you need…”

Click here to read the poems

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APRIL 24, 2014 ☘

in the woods copy 2 — A photo that shows Caitlin’s spirit, and how she tries to make the best of each day.

Caitlin has been listed for lung transplant for 2 years, as of today.

( n )

n stands for everything I don’t have the energy to write. In fact, I wasn’t going to post anything today—-there is nothing new to say, but—-I can’t let the day pass without marking the date.

So! In the spirit of positivity, here is a fairly recent photo from a good day, when Caitlin was feeling well. I post it as a harbinger of good days to come.

On this particular March day, Andrew pushed her up and down something called the “roller coaster” trail at Frick Park. They came upon this rustic hut.

Today also marks 100 years of Irish independence, an important day in our family. ☘ Easter, 1916. ☘

Update: I’ve alway read Yeats. This poem has nothing to do with Caitlin or our situation. I’m just noting the big Irish anniversary….

Easter, 1916

W. B. Yeats, 1865 – 1939

I have met them at close of day
Coming with vivid faces
From counter or desk among grey
Eighteenth-century houses.
I have passed with a nod of the head
Or polite meaningless words,
Or have lingered awhile and said
Polite meaningless words,
And thought before I had done
Of a mocking tale or a gibe
To please a companion
Around the fire at the club,
Being certain that they and I
But lived where motley is worn:
All changed, changed utterly:
A terrible beauty is born.

That woman’s days were spent
In ignorant good-will,
Her nights in argument
Until her voice grew shrill.
What voice more sweet than hers
When, young and beautiful,
She rode to harriers?
This man had kept a school
And rode our wingèd horse;
This other his helper and friend
Was coming into his force;
He might have won fame in the end,
So sensitive his nature seemed,
So daring and sweet his thought.
This other man I had dreamed
A drunken, vainglorious lout.
He had done most bitter wrong
To some who are near my heart,
Yet I number him in the song;
He, too, has resigned his part
In the casual comedy;
He, too, has been changed in his turn,
Transformed utterly:
A terrible beauty is born.

Hearts with one purpose alone
Through summer and winter seem
Enchanted to a stone
To trouble the living stream.
The horse that comes from the road,
The rider, the birds that range
From cloud to tumbling cloud, 
Minute by minute they change;
A shadow of cloud on the stream
Changes minute by minute;
A horse-hoof slides on the brim,
And a horse plashes within it;
The long-legged moor-hens dive,
And hens to moor-cocks call;
Minute to minute they live;
The stone’s in the midst of all.

Too long a sacrifice
Can make a stone of the heart.
O when may it suffice?
That is Heaven’s part, our part
To murmur name upon name,
As a mother names her child
When sleep at last has come
On limbs that had run wild.
What is it but nightfall?
No, no, not night but death;
Was it needless death after all?
For England may keep faith
For all that is done and said.
We know their dream; enough
To know they dreamed and are dead;
And what if excess of love
Bewildered them till they died?
I write it out in a verse --
MacDonagh and MacBride
And Connolly and Pearse
Now and in time to be, 
Wherever green is worn, 
Are changed, changed utterly:
A terrible beauty is born.

–Maryanne

FEBRUARY 18–Walnut Brains

I have been trying to write a post since the holidays, but there’s not much to say, except, it’s getting hard!! We’re two years into this, which seems impossible. Two years ago, when it was clear that Caitlin was finally going to need a lung transplant, I thought to myself: Okay! Let’s get this over with so our lives can get back to normal!

The universe is still laughing at me. I hope it stops laughing soon. But it seems we are living in crazy times. Caitlin recounts a recent dream:

“We were home in Ashland. I was upstairs, sick, and Donald Trump came to visit. He was nice at first, but then he started insulting me. “Only losers stay sick! I would have gotten better a long time ago! I would have gotten that transplant a long time ago, and it would’ve been the best transplant, better than anyone else’s!” At first we were all just dealing with him, out of some weird politeness, but then I thought, I don’t have to take this shit, and I rose up and bellowed at him at the top of my lungs and voice (which were both working well): “Get the hell out of my house! Now!” and he clammed up as I stared him down and pointed the way to the door.”

Every day is an effort for our kitten. In addition to lung problems, she’s got heart issues, blood sugar issues, headaches, body aches. The cold weather doesn’t help. When it’s super cold, the valves on the antiquated oxygen tanks can freeze, so she has to stay cooped up. Cabin fever produced yesterday’s silliness:

Oh Henry oh Henry how lucky are you!

Your brain’s the size of a walnut;

you’ve got nothing to do.

Nowhere to go and nowhere to be,

in many ways you are also like me.

But your walnut brain keeps you happy, content,

whereas mine leaves me sometimes needing to vent.

I’d trade with you for an hour, or maybe even a day.

Just to see what it’s like to live the pup way…..

It might be easier to have a walnut brain for a day, but she doesn’t; she has an overactive, optimistic brain that wants to get back to life. We know she will.

Recently, she had a good idea–that we should stop saying, ‘We are waiting for our daughter to get a transplant.’ No. We now say, ‘We are here to get a transplant.’

So that’s our plea to all who send prayers, good energy, thoughts, etc. each day. Here’s our mantra: Caitlin is ready and in good shape for her transplant.

–Maryanne