DECEMBER 24–All is Bright

It’s Christmas Eve, a night for faith and hope, no matter what your faith, no matter what you hope for. Last night, a visiting friend said he was angry, said, “Thatโ€™s where I struggle with faith. How could any God allow that to happen?” “No, no, no!” I said. “Please don’t think that. I need […]

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DECEMBER 21–Our Light

Word is getting out, so I will speak. After my light-hearted update yesterday, everythingย  spiraled out of control. After an early morning EEG which showed slowed brain activity, morning rounds showed that she had no responses at all. Her left leg had no blood flow below the knee, contributing to her worsening condition, and they […]

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12/19, 5:30pm — Into the OR

Let’s hope they find something that’s causing these increasing lactates! This OR trip is proactive and good. Caitlin has a great medical team! My aunt just asked a good question: Is she aware that she’s been transplanted? The answer is YES. She’s listening. We told her. We told her that the lungs are perfect Harry […]

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12/18–7:50pm

OKAY! She is successfully off the heart-lung bypass machine, and transitioned back onto ECMO. This needed to happen, and happen as quickly as possible. The dialysis will work to hopefully reduce the lactates in her liver. Thank you to our blessed real-life angel Sinead. I woke her up in London after the surgeon dropped the […]

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