Category Archives: Uncategorized

JANUARY 16–Ropes Course for Souls

Big Sur. I had it in my head that we needed to get here.

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Fairy Ring of Coastal Redwoods

The glorious, big days are somewhat easy here. Night is still night, and nights are hard. At 2am the night before last, after getting a dozen messages from people telling me of signs they were sure they received from Caitlin’s soul, I thought, okay, I’m going to ask for a hard sign. I want a monarch butterfly to fly around me in a complete circle. Tomorrow.

And yesterday we went to Esalen for massages and to experience their famous hot sulphur springs.

Time has been a strange thing. Sitting in the hot water with the sea crashing below, all I could think was, Exactly four weeks ago today, Caitlin was in surgery and we were so relieved and happy. And now I am at Esalen, a place that seemed like Neverland.

Nick loved the energy at Esalen and afterward, went to look at the big farm garden there. I sat in an Adirondack chair overlooking the Pacific and I thought about the end of Mad Men and how I wanted Caitlin to see that I was there and a couple of monarch butterflies began flying all around… not right around my face, the way I’d envisioned, but in big swooping circles that took in much more than me.

A few people have said they enjoy reading Caitlin’s thoughts so here’s something relevant, as we all face the coming week.

From: Caitlin O’Hara <caitlin.ohara@gmail.com>
Date: October 2, 2016 at 10:31:46 PM EDT
To: andrew
Subject: Wow read this

https://www.washingtonpost.com/national/finally-someone-who-thinks-like-me/2016/10/01/c9b6f334-7f68-11e6-9070-5c4905bf40dc_story.html

With my big book, Sarum – that I’ve been reading that traces England from beginning of man to now — to this new book I’m reading – which does a similar thing with the slave trade and is already so so so good and opening up news ways of looking at slavery (for me) I just feel like plus alongside this election, which is challenging everything I took for granted ..::it’s an interesting and weird time to be alive and experiencing. I can’t help but imagine these times in the past that I read about, and then think how the time we live in now will just be something that happened to someone else, in the future….It will be this weird blip in history that is a forgone conclusion because it’s over, it’s sorted out. We learn about bad things that happened and somehow they don’t seem quite as unbelievable because the people in the future have figured out why it happens, and we know the ending.  I hope it doesn’t happen soon, but at some point the US will no longer be around, or it will be much different than it is now. And it won’t seem weird to people reading about it in history books. We will just seem like the dumb idiots of history who elected trump. Like the sheep in Germany who followed hitler. A question on a test somewhere. We parse the decades out and they all seem so different

– when I read Sarum I have a tendency to do a double take when things are different from say 1650 to 1690—when the area in the book has undergone a huge change. But of course in our modern history entire revolutions and wars happen in shorter times. Countries fall. We are all the same and we all have a collective fallibility and vulnerability. It can happen to any country and any place … but we also are all the same in that we never seem to really learn from history or believe WE are the ones making mistakes.

It’s part of why the idea of souls makes sense to me. This place is just like a ropes course for souls. A learning center. It never changes and the collective body of humans can never sustain their progress too too much or else there is not enough to challenge the souls. Imagine all the people living life in peace ✌️ John Lennon – well that wouldn’t really work if you believe we need to be challenged to grow. At least in the human form.

 

 

** The slave trade book was Homegoing, by Yaa Gyasi

Sarum is by Edward Rutherfurd

JANUARY 7–Signs & signs

Weird to open up my little travel computer, here in CA, for the first time since December 20 and see all the windows containing my last hopeful posts, still open. iMessages is updating my text messages before my eyes, and all the texts of the past few weeks are flashing as if in real time.

So strange.

The other day, an old family friend of Jess’s (thanks, Miah) sent me a link to a medium who talks about animals and birds and signs and such. I listened to part of the podcast before we boarded yesterday.  The medium said, “Ask for signs. You will get them. They will surprise you.”

So on the flight to LA, I held Kitten’s bird ring and took photos of all the places she had been unable to visit the past ten years, due to altitude problems—-the Rocky Mountains, the Grand Canyon. I told Caitlin she was with us.

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“How about you?” I asked. “Are you with us? How about a sign?”

I didn’t expect anything, I must admit.

A few hours later, as we were preparing to land, there came this sudden howling in front of us. The howling of a cat. Right there, under the seat in front of us. A kitty had been there all along. It seemed so perfect we laughed.

When we got up to leave, I wanted to sneak a picture of the rascal, but it was hunkered down in its case. I tried anyway, and as I did, it sat up and looked right at me.

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Sign? I’ll take it.

(Note: WordPress would NOT let me upload that photo, and thus not save this post. For the last half hour I tried everything. Just when I was about to give up, it magically displayed here for me. ha)

We walked around a bit once we got here. Weirdly, a store that I really like, and have bought things from online, happened to be right around the corner. (I’ve never been to CA and had no idea where the store actually was.) We went in and I found myself pawing through the sale rack with an actress and her filmmaker husband –people Caitlin greatly admired. Of course my first instinct was to surreptitiously text her to let her know.

I’ll have to get used to that.

There were some other nice “signs,” though. Quite literal ones.

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And this morning, Jess’s mom texted from the Vineyard ferry, as she was on her way to Woods Hole. A gull (like pigeons, a favorite bird of Caitlin’s, she likes how fierce they are), decided to accompany her.

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From Santa Monica, peace and love from Caitlin—-

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JANUARY 2–Blue Moon

It is a quiet house here tonight. Jess is on her way back to California. Andrew has gone home to Maine. It was a difficult day. We were going to go into the Boston apartment but never did make it out of the house. All I could do was flop from one surface to the next and cry. I mainly lay on the couch in the family room near Caitlin’s tree, TV tuned to a favorite movie, long-ago DVR’d, which Caitlin and I watched half of this past summer when we were home. The Remains of the Day. One of our favorite movies, one of my favorite books.

I let it play on from where we had left it in August, midpoint: all the melancholy of Mr. Stevens’ trip to the west country to try and reclaim all he had lost. The meeting, after 20 years, between Miss Kenton and Mr. Stevens is all about regret and the inability to change the past– ‘Blue Moon’ playing in the 1950s background, all that poignant, post-war sadness.

It reminded me that before Andrew left today, as he packed up his truck, he found a note from Caitlin in his glove compartment, a reminder for all:

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DECEMBER 20–O.R. Revolving Door

The team just rounded. A chest tube on Caitlin’s left side is draining a bit more than Dr. D’Cunha likes. “She’s not unstable but I need to take a look. Clean her out.”

Last night, he said she would have a standing slot in the OR, every day for a while, in case they need to go in like this.

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Thanks, Syd, for this. Made me laugh.

She’s still critical and will be for a while. In the red zone, as Andrew says.

We all feel the prayers, the intentions, the healing energy, the Buddhist chants, the love, all of it. All of it. Thank you, thank you.

–Maryanne

PS. Happy birthday, Uncle Fun Fun.

12/19–Verdict: No Real Sign of Trouble

Caitlin came back from her trip to the OR. Her surgeon and his fellow thoroughly searched for anything that could be causing the high lactate levels. The good news was that they did a deep and thorough search and everything looked good. No dead tissue to be seen. The liver is likely the problem, because it is swollen, still recovering from deep trauma and the blood pressure meds it had to process. But it’s working; it is not dead. So it looks like it needs some time to heal from the shock her body’s been through. We have to hold tight. Be patient. Remain positive.

Some good news was that her chest had stopped bleeding. The surgeon was very happy about that. Also, the left leg looks okay, like it’s not the source of the lactate trouble, but they will be keeping a close eye on everything, of course.

Friends, this is going to be a slow and atypical recovery,  and we are going to have to learn to live with that—-with uncertainty and worry and relief and more worry and hopefully, a final blast of relief.

Honestly, it all feels like a game of whack-a-mole.

But….. Dr. D’Cunha really made us feel okay tonight. As we’ve learned in Boston, there are so many doctors in a teaching hospital that you learn to be careful who you listen to. One guy said something really stupid over Caitlin today, in front of Nick. (“Might have to amputate that leg.”)

Nick dealt with him.

Dr. D’Cunha, referring to that, said, “Caitlin has two doctors—-me and her (pointing to the wonderful Lara, his right-hand fellow). “We’re the only two you listen to, and when she’s talking, she’s talking for me, okay?”

Okay! Happy to have her in his good, life-saving hands.

I also put a sign above Caitlin’s bed: Positive Talk ONLY Around Caitlin, Please !!!

Thank you, all, for all of your continued prayers and light and love. What a blessed holiday season this has been for us, and, I hope, for all of you.

FEROCIOUS POSITIVITY CONTINUES

–Maryanne, with Nick, Andrew, Jess

 

PS: In the spirit of the season, I think Caitlin would be really happy if I posted this picture of Henry for a little dramatic relief.

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Henry the darling reindeer

🎶   🎶   🎶   🎶  🎶   🎶   🎶

 

 

DECEMBER 19–Update from the Trenches

Caitlin has new working lungs, but the rest of her is struggling, and she needs all the energetic help she can get, along with everything her incredible doctors are giving her.

1. Her liver is still in tough shape, but the numbers were slightly better this morning.

2. She’s producing a lot of lactate, which generally indicates lack of tissue oxygenation, but they are not sure from where. We need to get that number down, and ensure adequate tissue oxygenation.

3. On ECMO, a patient’s pulses are checked constantly. They’ve lost detection of a pulse in her left leg/foot, which is her non-ECMO leg, but it is too risky to bring her back to the OR to try and figure out what is happening here.

Normally, transplant patients are forced out of bed, even in pain, right away, to get them moving, but that’s impossible right now. We have to take it one hour at a time.

That’s our update. We’re so thankful we are on the other side of this battle, but she’s been dropped right back into the trenches, immobile and very beaten up.

 

–Maryanne, with Nick, Andrew, Jess