FEBRUARY 23– Eleven

Caitlin O'Hara, Cystic Fibrosis, Little Matches

A powerful pulsing of love in the vein We are in Arizona. We packed up Pittsburgh, sent all those boxes back to Massachusetts and came to another ‘bigger-than-we-are’ place to regroup. Pittsburgh was tough. It was also comforting. We were able to see a few of the good friends we made there. Mary and Ralph, […]

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FEBRUARY 16–Back in the Burgh

Caitlin O'Hara, Little Matches, Cystic Fibrosis

On November 16, three months ago today, we took Caitlin to the hospital for the last time. Now we are finally back in Pittsburgh, packing up our apartment. I’d been sick with dread, anticipating this, but I knew it was necessary to do it personally. My sister and brother-in-law are helping us, and that means […]

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FEBRUARY 11–Do you have kids?

Caitlin O'Hara, Cystic Fibrosis, Little Matches

The Surprises I forgot that I had ordered, for Caitlin, these kitty slippers from LL Bean that were back-ordered for months and last night I got word they were shipped. To Pittsburgh. Then I was rinsing dishes and realized that the candle from her last birthday cake was tucked into a little vase on the […]

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FEBRUARY 7–(Turn and face the strange) Changes

Caitlin O'Hara, Cystic Fibrosis, Little Matches

I have a cold and haven’t been able to breathe through my nose the past few days. I’ve been trying not to mind. It’s the least I can do. Being unable to breathe through her nose was just one more thing that Caitlin had to deal with. Her sinuses were blocked–a common CF problem–and after […]

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